SCLERODERMA ANNUAL TESTING
Scleroderma is a complex, autoimmune disease of the blood vessels and connective tissue. Annual tests are essential to monitor progression and identify associated conditions, such as PAH.
Scleroderma & Raynaud's UK (SRUK) is a charity dedicated to improving the lives of people with scleroderma & Raynaud's phenomenon. SRUK aim to raise awareness of the condition, invest into research to find a cure and provide support and information to all those affected.
The charity has developed an informative patient booklet to help explain why certain annual tests are required. To order free copies to use in consultations with your patients, please visit https://srukshop.co.uk/information-on-annual-tests-for-scleroderma/.
Alternatively, direct your patients to https://www.sruk.co.uk/scleroderma/annual-tests-scleroderma/ where they can read the information.
Annual tests should include, but are not limited to:
- Pulmonary function tests
- Cardiac function tests e.g. ECG, echo, cardiac MRI
- Urea and electrolytes
- Blood pressure
- Pain assessment
- Mental health
Actelion Pharmaceutical UK Ltd. provided funding towards the development of this booklet. Actelion have had no input into its content and editorial control remains with SRUK.
- SRUK (2019). Scleroderma Annual Testing Information. Available from: https://www.sruk.co.uk/scleroderma/annual-tests-scleroderma/. Accessed July 2019